Babies with congenital heart disease may require more calories per day than the average infant. HHS Vulnerability Disclosure, Help Bethesda, MD 20894, Web Policies Potential complications of a congenital heart defect include: Because the exact cause of most congenital heart defects is unknown, it may not be possible to prevent these conditions. Review the most up-to-date information available on medications and lactation on LactMed. Journal of Human Lactation, 18(1), 53-55. doi: 10.1177/089033440201800109. Some moms wonder if breastfeeding is too much work for their baby's heart. Feeding your baby is rewarding, and provides nutrition for your baby's physical and mental growth. You will need to begin pumping your breasts within the first few hours after birth. Unable to load your collection due to an error, Unable to load your delegates due to an error. While human milk provides the most complete form of nutrition for infants, including premature and sick newborns, there are rare exceptions when human milk or breastfeeding is not recommended. Recommendations for assisting the mother nursing an infant with congenital heart disease are included. We wish to pay our respects to their Elders past, present and emerging. National Library of Medicine Background: Several studies looking at several thousand pregnancies have found no increase in birth defects when lamotrigine is taken during pregnancy. Some babies with heart disease may also require feeding supplements to their formula or breast milk, or require feeding through a feeding tube placed into the nose. An eight-ounce to one-pound gain in a month may be an acceptable weight gain for a baby with a heart defect. (2013;2015). A typical heart has two upper and two lower chambers. National Pregnancy Registry for Psychiatric Medications: There is a pregnancy registry for women who take psychiatric medications, such as lamotrigine. 2022 Mar 26;11(7):1841. doi: 10.3390/jcm11071841. Maternal--infant bonding: a concept analysis. Would you like email updates of new search results? Does taking lamotrigine increase the chance for miscarriage? In the absence of evidence-based care, their mothers are also at risk for low milk supply and/or poor breastfeeding outcomes. Marino, B. L., O'Brien, P., & LoRe, H. (1995). Learn more about CHD from pediatric cardiologist Jonathan Johnson, M.D. Most cold medicines are safe while breastfeeding, especially if you take them short term and only when you need them. Congenital means that the problem was existing or present at birth. Few medications are contraindicated while breastfeeding. What else should I know about taking lamotrigine during pregnancy? An expert explains, Mayo Clinic Q and A: Hole in heart treatment options, Mayo Clinic Q and A:Tips to transition from pediatric to adult congenital heart care, Mayo Clinic Q&A podcast: Innovative procedures for kids with congenital heart disease. Breastfeeding Breastfeeding Your CHD Baby Amelia Willis is a full-time heart mom to her two-year-old son Jensen. Others are very mild. . medRxiv. If your baby gains weight too slowly and can't tolerate an increased volume of formula, your doctor may recommend increasing the amount of calories per ounce. Its the one thing that only you can do. From choosing baby's name to helping a teenager choose a college, you'll make so many decisions along the way. 2023 Apr;44(4):882-891. doi: 10.1007/s00246-022-03023-7. In fact, since children with congenital heart disease often have poor appetites, high-calorie foods and snacks can play a very important role in providing good nutrition. I left the hospital with 23 litres of expressed breastmilk (EBM). 1998-2023 Mayo Foundation for Medical Education and Research (MFMER). After delivery, you should continue to pay attention to when you drink alcohol if you're breastfeeding your baby. Infant cardiac surgery: mothers tell their story: a therapeutic experience. If your baby is diagnosed with a congenital heart disease either before or immediately after birth, you probably won't get the opportunity to nurse your baby at delivery. PPCM affects about 1 in 1,000 women in the U.S., and symptoms are similar to heart failure in an older adult - the heart simply gives out, causing exhaustion and inability to perform daily activities. Learning about your child's congenital heart defect can help you understand the condition and know what you can expect in the coming months and years. The heart is divided into four chambers, two on the right and two on the left. 2023 Apr 29:2023.04.26.23289126. doi: 10.1101/2023.04.26.23289126. The sooner you begin pumping and the more often you pump, the sooner you will have milk for your baby. Some congenital heart defects can be seen on an ultrasound while the baby is still in the womb. But other cases, like when babies are born with parts of their hearts missing, require immediate care. Mayo Clinic. 2023 American Heart Association, Inc. All rights reserved. It happens when a baby's heart does not form correctly as the baby grows and develops in the mother's womb during pregnancy. If your baby is receiving a diuretic such as Lasix, your cardiologist may recommend a potassium supplement because some diuretics remove potassium from the body along with the excess fluid. Most of these murmurs are actually innocent, but it's important to check them out. Saving Lives, Protecting People, T-cell lymphotropic virus type I or type II, American Academy of Pediatrics Policy Statement: Breastfeeding and the Use of Human Milk, The Transfer of Drugs and Therapeutics Into Human Breast Milk: An Update on Selected Topics, Protocol #26: Persistent Pain with Breastfeeding, Technical Report: Breastfeeding and the Use of Human Milk, Clinical Considerations for Mpox in People Who Are Pregnant or Breastfeeding, Infant Feeding for Individuals with HIV in the United States, Division of Nutrition, Physical Activity, and Obesity, National Center for Chronic Disease Prevention and Health Promotion, About the mPINC Ten Steps Assessment Tool, How to Use the mPINC Ten Steps Assessment Tool, Crosswalk: Aligning mPINC and the Ten Steps, Breastfeeding and Infant Feeding Practices, Proper Storage and Preparation of Breast Milk, Food Safety for Infants After a Natural Disaster, Maternal or Infant Illnesses or Conditions, Methicillin-resistant Staphylococcus aureus (MRSA), Healthy Weight, Nutrition, and Physical Activity, Maternal, Infant & Toddler Nutrition, Physical Activity & Healthy Growth, U.S. Department of Health & Human Services. Breast cancer. Trabulsi JC, Lessen R, Siemienski K, Delahanty MT, Rickman R, Papas MA, Rovner A. Pediatr Cardiol. A congenital heart defect is a problem with the structure of the heart that a child is born with. Four days after being home we went back to hospital as Ethan was breathing funny. Doctors try to limit these interventions as much as possible and only recommend them if absolutely needed. You can talk with your babys nurse or doctor if you would like to try to breastfeed first. Babies with heart disease may get tired easily while they're feeding. A baby with this birth defect is unable to pass food from the mouth to the stomach, and sometimes . Breast milk is the best nutrition for your baby. An occupational therapist, clinical nurse specialist or feeding team member may assess your baby's feeding habits and make recommendations for a specific feeding schedule and nipple. What are the responses & needs of mothers of infants diagnosed with congenital heart disease? Pale gray or blue lips, tongue or fingernails (cyanosis), Swelling in the legs, belly or areas around the eyes, Shortness of breath during feedings, leading to poor weight gain, Easily becoming short of breath during exercise or activity, Easily tiring during exercise or activity, A hole in the wall between the heart's lower chambers (ventricles), A narrowed passage between the right ventricle and pulmonary artery, A shift in the connection of the aorta to the heart. Purpose: Summarize methods of ideal breastfeeding support. Current Strategies to Optimize Nutrition and Growth in Newborns and Infants with Congenital Heart Disease: A Narrative Review. Nutrition, growth, and allergic diseases among very preterm infants after hospital discharge. It could be several days to several weeks afteryour baby'ssurgery before you can nurse at the breast. However, not every child with congenital heart disease requires active treatment and the defect may pose no harm to their health. A baby born with a congenital heart defect(CHD), however, may not gain weight as rapidly as other infants, despite your hard work and persistence, and at times this may be frustrating. Some conditions such as Trisomy 21 (Down syndrome) have different growth charts. Some conditions can be treated with medications. Mother is using an illicit drug, such as opioids, PCP (phencyclidine) or cocaine, Mother has mpox virus infection (Note: breastfeeding should be delayed until. Phillips SD (expert opinion). Congenital heart defects (CHD). You may notice a pale gray or blue skin color called cyanosis. 410-328-3865. Some babies can't eat or drink enough formula to grow. Exposure Information Service However, babies with heart disease tend to gain weight at a much slower rate. eCollection 2022 Aug. Eur J Obstet Gynecol Reprod Biol X. If you notice anything unusual in your nursing infant, discuss the symptoms with your childs healthcare provider. For most infants with birth defects, breast milk is still the optimal source of nutrition. Altaweli, R., & Roberts, J. Many babies can be breastfed while being fed via a nasogastric tube. 2019; doi:10.1002/bdr2.1497. Accessed March 1, 2022. Medications known to increase the risk of congenital heart defects include thalidomide (Thalomid), angiotensin-converting enzyme (ACE) inhibitors, statins, the acne medication isotretinoin (Myorisan, Zenatane, others), some epilepsy drugs and certain anxiety drugs. Babies with congenital heart disease typically do best when fed more often and on a demand schedule. Philadelphia: Wolters Kluwer Health/Lippincott Williams & Wilkins. 2013. The https:// ensures that you are connecting to the It is reassuring to talk to other mums and hear they were going through similar challenges. Altered connections allow blood to flow where it usually wouldn't. You should use a hospital breast pump and pump every 2-3 hours for the first week. Your doctor will help you determine when solid food should be added to your baby's diet. However, the benefit of using lamotrigine may outweigh possible risks. A pulse oximetry measurement may be performed to estimate the amount of oxygen in the blood. Your baby's pediatrician or cardiologist will weigh your baby with each office visit. Very complex heart problems may cause significant changes in blood flow or undeveloped heart chambers. Cues fewer than 8 times in a 24-hour period. North American Antiepileptic Drug (AED) Pregnancy Registry: There is a pregnancy registry for women who take antiepileptic medications, such as lamotrigine. In general, exposures that fathers or sperm donors have are unlikely to increase risks to a pregnancy. Mothers who provide breast milk to an infant with a birth defect may need extra support to establish and maintain milk production. Seeing your baby's heartbeat on an early pregnancy ultrasound is one of the surest indicators that a pregnancy is proceeding as it should. If a mother's goal is to directly breastfeed, this should be facilitated during the infant's hospital stay. Your baby's medication may need to be adjusted or a formula change may be needed.

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